Pre School to College
I am not going to pretend making the right choices for education is easy. You are torn between special education and inclusion in maintream. You will face the challenge of getting a statement (now an EHCP). You will feel powerless, frustrated, overwhelmed one minute and ready to plough on the next. I am deliberately trying to avoid using words like fighting for everything or battling for them. Too often people will tell you you're going to have to fight for everything and I have learnt over time that it puts you in the wrong mindset and you go into every situation roaring like a mama bear protecting her cubs and this is exhausting. For what it's worth I would say do some reseach prepare some arguments and go in to situations feeling calm and confident that you know your stuff. Save mama bear for when all else fails!
So which route did we take?
For pre-school we had the best of both in that Tom was welcomed into the local playschool for a few sessions a week with a dedicated one to one. On the other days he went to a specialist nursery run by our local MENCAP. He thrived at both. About this time my compassionate leave from work expired. After a brief return I resigned and started to put something back by volunteering for our local Portage service then, once Tom moved onto school, working at the MENCAP playschool as a speech therapy assistant utilizing the skills I had learnt through Tom - Signalong, PECS and patience!
Tom started his school career on the same day Hannah made the move from primary to the local grammar. After much challenge (and the odd mama bear outburst) Tom went to a special school for children with profound and complex needs. We had two schools we liked that one and one for children with moderate learning difficulties. Looking back I think we were swayed by the facilities at the PCN school - they had swimming and hydro on site and went right through to 19 including residential when they were older.
Well we got it wrong! Six months into his time there we were told they did not feel they were the right place for him.
Thankfully, someone was watching out for him/us and our second choice could still take him. He settled well and went on to spend 11 years there. It wasn't all plain sailing. I think this is where we came to realise how important relationships were to Tom as the years where he formed an amazing bond with the teacher and support staff were more successl than those where he did not. Thankfully the latter were few and far between. It was here that he went through one of the most challenging periods in terms of behaviour that led to us accepting the autism diagnosis. The staff were very supportive and I have continued to work with this school as a governor.
16+ saw Tom move to a school which specialised in Autism (our reason for accepting the diagnosis). This was not a great fit for Tom but it was the best fit. There were many clashes with staff as Tom did not really conform with their student profile. Mama bear was unleashed on occasions. However, by working with the staff, I managed to keep him there until he was 19.
Then the challenge started again.....